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Schlagwort: Rare bone and mineral conditions

The Landscape Of Registries And Databases

Data collection on rare bone and mineral conditions in Europe: The landscape of registries and databases

European Journal of Medical Genetics
Volume 66, Issue 12, December 2023, 104868

Knowledge on the natural history of rare diseases is necessary to improve outcomes. Disease registries may play a key role in covering these unmet needs in the rare bone and mineral community.

Artikel unter https://doi.org/10.1016/j.ejmg.2023.104868

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